"What if you knew, even before your child was born, that she wouldn't look like everyone else?"

Treacher Collins syndrome. "Parents almost always opted to abort, doctors said."

"It was kind of strange sometimes with the doctors, some of whom I think really, really questioned why we had this baby," says Eric Beatty, Clara's dad.

ADDED: This story (and the picture at the link) called to mind "Autobiography of a Face," an excellent memoir.